To be honest with you I really don’t care. I don’t care that some scientists have found a link between some (and I mean only some) individuals who have Autism and a genetic mutation. And I don’t care if they are finding that the genetic mutation is coming from the dad, particularly dad’s over 35 years old. But, I Do care that they are spending millions of dollars on this research. That I care about.
The last time we took Liam to see a Neurologist was a year ago. It was our third Neurologist and probably our last. He was new father himself. I thought that alone would help him sympathize with our situation. It didn’t help.
He really had nothing to say but, was eager to hand us some pamphlets on Autism and how to help your child. I had to stop myself from laughing out loud. I knew wayyyyy more than he did about how to help my child and I was already doing it all, and then some. I wanted to hand HIM some pamphlets on ”How to treat your patients and their families when they are facing Autism”. After he handed us those “extremely useful” pamphlets he told he’d like to do some genetic testing on Liam. My first gut feeling was “why? why put us through that?” But, we did it anyway. Even though we told him Liam’s story from start to finish and explained that he wasn’t always like this and that he was talking and interacting and playful and funny and…… he didn’t hear one thing! In fact, HE didn’t care.
Genetic testing in my eyes, is a cop out. I kept thinking “even if he HAS the gene, then what?” we give up? we throw in the towel? we take him off this incredibly vital diet he is on (which is what the doctor (and all others) wanted us to do, by the way). I couldn’t understand the value in it.
When researching this new finding of a possible genetic mutation linked to Autism I read that they are finding only a small percentage of people with Autism that have this mutation. That many many kids nowadays being diagnosed with Autism don’t have the mutation. Their is a new breed of Autism that has developed through environmental and other contributing factors. This is exactly what I predicted. And the real reason for this is just too scary for Doctors to admit and pass on to their patients (the public).
The answer is that it’s us and our environment. Why do you think most disorders and diseases are on the rise? We are not a healthy nation and we don’t live in a healthy environment. Period. This is the result of years of abuse on our systems. But instead of owning up to this and trying to do something about it…like maybe spend some of that money to actually help FIX the problem, they are now trying to “undiagnose” many kids on the spectrum. Making it harder for a child to actually get the Autism diagnosis. Yes, this will bring down the numbers on paper but in actuality it will make it harder and almost impossible for some kids to get the services and therapies they need to improve and survive in school.
So, as you can see their are many things going on here that aren’t helpful. The intent on finding this gene is questionable. I think it gives the medical profession some relief. As if to say ”Ah Hah! It’s your fault, too bad, nothing we can do”.
The only benefit, as I see it is that they find this gene in utero, while Mom is pregnant and then she has the ability to make the conscious decisions to: a) make sure he/she is living and eating a clean healthy diet and lifestyle including making mindful decisions about vaccinations and b) be aware of very early signs of Autism that many parents either don’t see or dismiss (justifiably so). Now this would be helpful. It would stop the guessing game, the worry and fears we all have as parents when are kids are developing. It still wouldn’t help those kids that become Autistic at a later age due to toxins and other environmental factors but if we are all being honest these kids are flagged in their own ways. They typically have compromised immune systems, digestive and gut issues (the two go hand in hand) which of course leads to extreme inflammatory reactions to vaccinations.
In the future if these children were ”tagged” before vaccinations were introduced to their systems I believe we will have very different results. I am not saying that kids should not be vaccinated. I believe vaccinations are around for a reason. But I also believe that some kids cannot tolerate them. And why, for god’s sake do we have to give them to our children all at once? Why can’ they be spread out more? Giving the child and its system time to respond to them appropriately.
Maybe this gene finding will be helpful in more ways than I am seeing it. Maybe it will guide us better in helping our kids to recover. We can then put a line in the sand: Kids born with Autism go this way to recover and kids who acquire the syndrome go this way to recover. If only it were that easy.
Liam’s Neurologist called us 6 weeks later with the results of that infamous genetic test. He wasn’t satisfied and wanted to do further testing on Liam and us, as the parents. We refused.
By the way Liam’s genetic test came back negative. Now what fancy doctor?
Thanks for reading, caring and sharing.